Regarding Caroline

Before there was Recovering Kids, there was Caroline… my 18 year-old daughter who’s been an inspiration to our family and many others through her journey to heal from autism, PANS and Lyme.

During the first 3 years of our journey with biomedical treatments, we chronicled it all at the website Regarding Caroline (see below for select posts).

As our community grew, I became determined to find a way to help as many parents as possible and so began the Recovering Kids Facebook Group.

In 2024, I began a new blog Diary of Recovery to share my journey to recovery from Long Covid.

All of my treatments have also helped Caroline! So we decided to make it a joint page and hope you find it useful 🤍

We also have a Facebook Page and Instagram account if you’re interested.

Thank you for sharing in our journey!

Recovering Kids Blog

| Posts by Rebecca Ferguson – Regarding Caroline

Posts for Women by Rebecca Ferguson

Regarding Caroline

| To access the original Regarding Caroline blog and see the entries in this list, click here.

Click here for full details on diagnosis & treatment timeline

Chronological list of inteventions we tried when she was younger.

Blog posts not linked below are still available at the Regarding Caroline site.

Behavior balance DMG – improved tolerance, language, transitions, engagement
Digestive Enzymes – subtle changes indicated we needed to change diet
Diet changes – GF then, CF & SF
Vitamin and Mineral supplements
Treating yeast naturally – calmer, more present, less stimmy
Mb-12 injections – language burst
Cod Liver Oil – increased tolerance and mood
Specific carbohydrate diet – more focus and attention, far better than GFCFSF
Diflucan – language burst, more present, less brain fog
Flagyl – less OCD
Melatonin – dramatically helped sleep
Low dose Naltrexone – initially helped but we stopped – she couldn’t sleep
mHBOT – lessening of all autism symptoms, calmer, happier, more tolerant, better language, less tantrums / anxiety – increased yeast
Andy Cutler Chelation – 85 rounds – more tolerance, improved awareness, focus, social engagement, significant language gains
Adrenal cortex extract – stopped meltdowns
Homeopathy – results have never lasted, we tried many times
Camel milk – more engagement, attention and language
Treating Parasites – reduced teeth grinding, pacing, scripting, verbal stims & fogginess
L carnosine & Seriphos – improved calmness and agility
Herbs for PANS – Goldenseal and others – successfully replaced antibiotics
Nootropics: Get Smart – Dramatic cognitive gains
Thyroid treatments – more present, less need for adrenal support
Removing probiotics – stopped ocd / tics
Neuroprotek – decrease in OCD, calmer and happier – stopped b/c it’s a COMT inhibitor
Propranolol – helped with anxiety, but she was more present without it, I regret using this one
Galantamine – less OCD, more focus, lifted brain fog
Huperzine A – less OCD, more focus
PQQ – excellent mito support
BH4 & binders – treated ammonia – reduced laughing that presented like yeast
Treating Lyme with antibiotics and herbs
Detox Support with various supplements – necessary for Lyme treatment
Anti-androgens – calmer, eliminated short rage episodes, more language, more engaged
CBD Oil and Terpenes – reduced anxiety, inflammation and pain from Lyme
Treating mood, anxiety and mild depression naturally

| Pages of interest

| Select blog entries

Advanced Treatments for Autism and Strategies for Non-Responders

Hyperbaric Oxygen Therapy (HBOT) | Healing for Mitochondria & Autism

VIDEO: Autism Prevention | What the Parents Say

Probiotics: Should you be questioning them too?

Fountain of Intelligence…. in a Bottle — Get Smart

PANDAS: A Year in Review | Keeping yeast and bacteria in check [tightrope graphic]

Trifecta. Betting on Supplements (summer of biomed results)

Recovery. Measured in Hugs — MTHFR & revisiting mb-12

Vaccine Controversy | A PubMed Compilation

Gone Fishing | Casting out for parasites and yeast

L-Carnosine & Seriphos | Calm, aware, talkative & agile!

It takes a Detective | Yeast :: Bacteria :: Parasites

Fragrance Toxins are the New Secondhand Smoke

Kickin’ it Old School | Replacing PANS antibiotics with natural options

Got Camel Milk?

Andy Cutler Chelation Protocol

Chalkboard Campaign – Vaccine info

The Vaccine Connection

A New Chapter… Finding our way to a PANS / PANDAS Diagnosis

Using Homeopathy Alongside other Treatments

I’m at the Health Food Store… now what? [Behavior Balance DMG]

The Meltdown to End All Meltdowns [Adrenal Support]

Changing your Child’s Diet… one french fry at a time

Cod Liver Oil… make mine a double

VIDEO link: https://youtu.be/J3cFEaScCfQ?si=0L70ApOFyfAu4hLt

A note about Guradianship for kids over 18 This is for anyone who is searching the site for it 🙂

It’s from a comment I posted under a FB post:

I want to say that I am very understanding that people who have spent so much time and effort pursuing a guardianship because an attorney told them they needed one (under false reasons) want to believe it is the truth — and need to defend it as necessary.

I feel sorry to have to give contradicting information however, as an attorney myself, I need to try to correct this misinformation.

The only reason someone needs a guardianship for an autistic child is if they are afraid that the child will be taken out of their custody by for instance, the other parent.

With medical and financial power of attorney you have the exact same rights as guardianship and it’s quick and easy.

They do need to be able to sign their name. But it can be an “X”

Guardianship will do nothing to keep a child from being liable for committing a crime or opening a credit card (mentioned by others) Or any other dishonest reason attorneys give to make money.

The main thing the guardianship does is keeps the attorneys and courts in business 😞

and opens you up to governmental scrutiny

and forces you to submit accounting records etc.

I am so grateful that an honest special needs attorney clued me in – and the only reason is because she stopped doing guardianships. (Because she felt it was unethical) so— switched her practice to estate planning.

If you’ve ever been through a divorce, you will know you don’t want the government in your business.

I would not encourage anyone to pursue a guardianship unless they are having custody fights and that is exactly what the special needs lawyer told me.

Please don’t private message me for advice.

It’s the truth and if you don’t want to believe it, that is ok with me. I just want to try to save some people from the expense and headaches that are in 99% of cases not necessary.

I’m so sorry 😞please don’t kill the messenger

❤️❤️❤️❤️

#guardianship